THE LOWE SYNDROME TRUST
APPEAL
Lowe Syndrome (OCRL) is a devastating genetic disease that affects thousands of little boys born worldwide born with cataracts (either blind or partially sighted), stunted growth, poor muscle tone, rickets, scoliosis, arthritis (some never walk), kidney problems and mental impairment. In spite of these handicaps the little boys have extremely happy and cheeky personalities. Sadly, few survive to become adults.
Yet today, it may be within our grasp to help cure this disease. The Lowe Syndrome Trust was formed in June 2000 as the only UK charity to raise money for medical research to cure this disease. The Trust is small and voluntary organised from a home office, but already has funded Lowe research projects at Great Ormond Street children’s Hospital, Dundee University, Imperial College London and University College London – all through campaigns and various fund raising events. All we have to do is raise relatively small amounts of funding.
The disease has no government support or funding for research.
If you would like more information, to attend local events or help sponsor fundraising events, please see www.lowetrust.com or contact the Lowe Syndrome Trust on lowetrust@homechoice.co.uk
Jonathan Ross
Trustee, The Lowe Syndrome Trust
