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About Lowe Syndrome Trust

Research

Get Involved

Media

Events

Links

Lowe Associations & Resources

  • Lowe USA
  • Lowe France
  • Lowe Italy
  • Baylor College of Medicine, USA

Disability Support Groups

  • ABA Applied Behaviour Analysis
  • The Counselling Directory for Disabilities UK
  • CLIMB UK: Children Living with Inherited Metabolic Disease
  • The Challenging Behaviour Foundation
  • Family Fund Grant-Giving for UK Families with Disabled Children
  • Foundation for people with learning difficulties, UK
  • Contact a Family UK
  • IPSEA Independent Panel for Special Education Advice
  • National Autistic Society
  • Kidney School

General Medical Sites

  • Index of UK healthcare resources   www.healthcentre.org.uk
  • Search for medicines
  • Fanconi
  • Acidosis
  • Ricketts
  • Poor growth
  • How to read a blood test
  • Epilepsy
  • EPA-rich Fish and Primrose Oil (Eye-Q) 

Alternative & Unconventional Medicine

  • Acupuncture
  • Neurolink

Other Sites of Interest

  • Battens Disease (also a missing enzyme)
  • Gene therapy 
  • Gaucher (also an enzyme disease)
  • Stem Cell therapy

Lowe Syndrome Trust | Phone: (+44) (0) 207 794 8858 | E-mail: lst @ lowetrust.com

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