Lowe Syndrome Trust Events

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2016 Newsletter
Lowe Syndrome Trust invited to 10 Downing Street local charity day for outstanding achievement.  See DCMS blog with a video made at 10 Downing Street
Chari-Table App - UK restaurant booking application donates 1 to the charity for each reservation. Please click the link to see details.


The Lowe Syndrome Trust Valentine Charity Auction - a series of fantastic items is up for auction. Bid must be placed by 6pm on the 6th February 2015. Please click the link to see the full list.


Royal Society Lowe Symposium 12th December 2014:

Exclusive Cadbury Gold Wispa Bar on sale for Lowe Syndrome Charity
Leeds Marathon Places 20th July Application Form

Jonathan Ross Wins July 12 ITV TV show "Tipping Point" for Lowe Syndrome


Click Here-  8pm Sunday 8th Dec - Andy Mitchell & Big Funk - Purple Turtle
 65 Crowndale Rd  London NW1 3JB (Mornington Crescent Stn) 10 tickets,  Also See YouTube
Click here for Charity Dinner with author Stephen D Smith Friday Sept 13th Sheffield The Three Merry Lads Sheffield S10 4LJ Tel 01142302824 Tickets Incl 4-course dinner 25
Click here  Lowe Syndrome joint venture partner with European Rareconnect EuroDis and Nord. Lowe families in Europe can share experiences. Let Your MEP know and help.
Click here  F4R Research for Lowe Syndrome project in Spain donation site.  Also see Click Here
Click here to support & donate  Hanna Robinson Great North Run Sept 2013
Click Here to support & donate Samantha Whur Shaving her hair for Lowe Syndrome August 2013



  • Click Here for ICAP 2011 Charity day event
  • Click here to Sponsor Jason Harwood - June cycle challenge from Lands End to John O'Groats
  • Click here for May 8th Burgh House NW3 Opera Event details and programme  -  SOLD OUT 



  • Mark Emms of Three's A Crowd - Mount Kilimanjaro climb - Sponsor
  • Jason Harwood Hollyhead-Cromer Cycle, 30th August - Sponsor 
  • Sally Hammer The Mazda London Triathlon, 1st August - Sponsor
  • Paul James, a Voice for Disabilities - View
  • Tom Perry  BUPA London 10K, 25th May - Sponsor
  • Sicily Bike Challenge, May - View - Article about Danny Farmer Crash
  • Cycle Challenge Wine Evening @ Speakseasy, Epping - View



  • Lowe Charity CD - Buy - Listen
  • Medical Futures Innovations Award with J. Ross - View
  • Skateboarding Across New Zealand - View & Donate
  • Bryan Ferry Charity Gala  Programme  - View
  • Tuscany Charity Bike Challenge  View
  • Schroders Charity Wine Tasting Evening - View
  • La Pigalle Christmas Party for release of Lowe Christmas Album - View



  • Old Cranleighan Ball Mdme Tussauds, 27th October - View
  • J. Ross, Newton Faulkner, Russell Watson & Beverley Knight, 25th Sept - View
  • Lowe Symposium, 7th December - View
  • Italian AISLO, 9th September - View
  • Hyde Park Ladies 5km Fun Run, 16th September
  • Esporta Swiss Cottage, 6th September - View
  • Boogles Tennis Charity Private Box, 19th-23rd June
  • Charity Cycle Maseille to Monaco, June - View
  • Chicago Musical with Tony Hadley, 29th March - View



  • World Skateboarding Distance Record, BoardFree - View
  • Masquerade Ball, October - View
  • Sophie Hall runs Dublin Marathon
  • David Kilbourn climbs Mont Blanc
  • Charity Cycle, London-Reims, June - View
  • Devonshire House School Fundraiser - View
  • Spitz Wine Bar
  • Dave Cornthwaite skates John'O Groats to Lands End - View
  • Ladies Who Lunch with J.Ross & Jono Coleman, 12th May - View



  • Two Castles Run, 12th June
  • Black & White Ball, May - View
  • J. Ross on Ready Steady Cook
  • Iain Stemp runs London Marathon - View



  • UK Cup Charity Football Match in Italy donates 8000 - View
  • Hyde Park Fun Run, September
  • Olsen Women of Achievement - View
  • Ladies Who Lunch with Tris Payne, 6th May - View
  • House of Lords Reception, 7th July - View
  • Golders Hill School Fundraiser, Finchley Road



  • Nutcracker Ball, 25th November - View
  • Flora Light Women's Challenge, 14th September
  • Two Castles Run, 8th June



  • Halloween Party with Tony Hadley & FABBA Girls, 31st October - View
  • Mayfair Valentine Ball with Jonathan Ross - View (pdf)
  • Flora Light Womens Challenge
  • 77 Wine Bar Anniversary Party
  • BT Ignite Sports Day



  • London Marathon
  • Flora Light Women's Challenge
  • Valentine Ball with J. Ross & Vanessa Feltz
  • "The Kid" Benefit, Hampstead New End Theatre with Vanessa Feltz, November
  • Witches of Eastwick Benefit with Ian McShane, July - View
  • PJ's Trust Launch