News & Articles

  • The Story So Far Leaflet – View
  • Lowe Syndrome Family Medical Information Booklet – View
  • 2016 Newsletter – View
  • BBC News Oct 2017 Mother calls for Independent Inquiry Lowe Syndrome Child – View
  • Paul James website http://www.livingwithlowes.com/
  • Lowe Baby Appeal – View
  • 2015 Newsletter
  • Charity Supporters Letter from Jonathan Ross – View
  • Birmingham University Neurodevelopmental Research Grant Award – View
  • Exclusive Cadbury Gold Wispa Bar on sale for Lowe Syndrome Charity
  • Ham and High Article – One Direction Pitch In to help Lowe – View
  • Melanie C Calender 2013 for Lowe Syndrome Charity – Download Poster
  • Ham and High Article garden of hope 2012 launch – View
  • Look to the Stars – Lowe Sydrome Garden of Hope 2012 – View
  • Dr Tim Levine – OCRL Institute of Opthalmology 2012 – View
  • One Direction Signed Sweatshirt auction 2013 – View
  • Good Housekeeping Inspirational Women – View
  • Breakthrough Breastcancer Inspirational Awards 2009 – View
  • Star newspaper 2012 – View
  • Lowe Charity Bracelet donation – View
  • Thomas Wiley – My Next Goal is for you – View
  • Press Release: March 2008 – View
  • Press Release: Purdue University – View
  • Hello! magazine Jonathan Ross – View
  • Hello! magazine Floridita Charity Ball – View
  • BBC news 2008 – Manchester University Zebra Fish study into Lowe Syndrome – View
  • Daily Express 2008 Penny Lancaster and Lowe Syndrome Charity
  • Imperial College London Newsletter 2008 – Lowe Syndrome Research
  • Dr Antony Norden – My introduction to Lowe Syndrome – View
  • Visit to Italy Lowe Association AISLO 2007 – View
  • 2006 Charity Newsletter – View
  • Andrew Money – age 32 – View
  • My son with Lowe Syndrome Connor – View
  • Feeling Lowe – View
  • 2005 Take it Easy Magazine – Oscar thomas

Medical Research Papers

  • 2016- Lowe Syndrome Research Summary – Imperial College London – View
  • 2014- A role of OCRL in clathrin-coated pit dynamics and uncoating revealed by studies of Lowe syndrome cells – View
  • 2012 -Lowe Syndrome:Primary Cilia and Therapeutic Prospects – View
  • Perdue- LS is not an isolated disease but related to the heterogeneous group of ciliopathies

Media

  • 10 Downing Street Local Charity Recognition 2016 – DCMS blog and video
  • Lowe Syndrome Trust Charity – Youtube
  • Lowe Charity 10th Anniversary – Youtube
  • Lowe Syndrome – Luke’s Story and I believe in father Christmas Album – Youtube
  • GMTV Grant Award – Youtube
  • Paul James Radio