The Lowe Syndrome Trust has lots of helpful guidance to offer families affected by Lowe syndrome. We have gathered advice from parents and studies from medical professionals to produce a FREE Lowe Syndrome Booklet, and an A&E information sheet.
Lowe Syndrome Booklet
A&E Information Sheet
As Lowe syndrome is a rare disease, many medical professionals are not aware of the specific medical requirements of boys with Lowe syndrome. The A&E information sheet clearly lists important medical facts about Lowe syndrome to quickly inform doctors and nurses in the Accident and Emergency department.Click here