LST Resources

The Lowe Syndrome Trust has lots of helpful guidance to offer families affected by Lowe syndrome. We have gathered advice from parents and studies from medical professionals to produce a FREE Lowe Syndrome Booklet, and an A&E information sheet.

Lowe Syndrome Booklet

The Lowe Syndrome Trust have produced a FREE information booklet about life with Lowe syndrome, including medical information and helpful guidance on many different aspects of the disease.

Click here to download PDF



A&E Information Sheet

As Lowe syndrome is a rare disease, many medical professionals are not aware of the specific medical requirements of boys with Lowe syndrome. The A&E information sheet clearly lists important medical facts about Lowe syndrome to quickly inform doctors and nurses in the Accident and Emergency department.Click here

Click here to download A&E Info Sheet