Fundraising Events


  • 2020 Newsletter
  • Re-release of charity CD “sounds of the pub” – With the Coronavirus (COVID-19) making many pub goers housebound, Lowe Syndrome Trust is re-offering ‘Sounds of The Pub’ CD on Amazon. Just play the CD from the safety and comfort of home to recreate your local pub atmosphere! The proceeds from CD sales will be kindly donated to the Charity by the CD and film director John Mackenzie, who directed “12 in a Box” and other films.






The Lowe Syndrome Trust Valentine Charity Auction – a series of fantastic items is up for auction. Bid must be placed by 6pm on the 6th February 2015. Please click the link to see the full list.


Royal Society Lowe Symposium 12th December 2014:

Exclusive Cadbury Gold Wispa Bar on sale for Lowe Syndrome Charity
Leeds Marathon Places 20th July Application Form
Jonathan Ross Wins July 12 ITV TV show “Tipping Point” for Lowe Syndrome View


  • Click Here 8pm Sunday 8th Dec – Andy Mitchell & Big Funk – Purple Turtle, 65 Crowndale Rd London NW1 3JB (Mornington Crescent Stn) £10 tickets, Also See YouTube
  • Click here for Charity Dinner with author Stephen D Smith Friday Sept 13th Sheffield The Three Merry Lads Sheffield S10 4LJ Tel 01142302824 Tickets Incl 4-course dinner £25
  • Click here Lowe Syndrome joint venture partner with European Rareconnect EuroDis and Nord. Lowe families in Europe can share experiences. Let Your MEP know and help.
  • Click Here F4R Research for Lowe Syndrome project in Spain donation site.
  • Click here to support & donate Hanna Robinson Great North Run Sept 2013
  • Click Here to support & donate Samantha Whur Shaving her hair for Lowe Syndrome August 2013


  • Click here for 4th Royal Society Symposium December 2012 agenda. Symposium Report
  • Click Here for Penny Lancaster announces new “Garden of Hope” lowe syndrome website


  • Click Here for ICAP 2011 Charity day event
  • Click here to Sponsor Jason Harwood – June cycle challenge from Lands End to John O’Groats
  • May 8th Burgh House NW3 Opera Event details and programme – SOLD OUT


  • Click here for Royal Society Symposium 2010
  • BGC 2010 Sept 11th charity day event
  • 10th Year Anniversary events


  • Mark Emms of Three’s A Crowd – Mount Kilimanjaro climb – Sponsor
  • Jason Harwood Hollyhead-Cromer Cycle, 30th August – Sponsor
  • Sally Hammer The Mazda London Triathlon, 1st August – Sponsor
  • Paul James, a Voice for Disabilities – View
  • Tom Perry BUPA London 10K, 25th May – Sponsor
  • Sicily Bike Challenge, May – Article about Danny Farmer Crash
  • Cycle Challenge Wine Evening @ Speakseasy, Epping – View


  • Lowe Charity CD – Buy – Listen
  • Medical Futures Innovations Award with J. Ross – View
  • Skateboarding Across New Zealand – View & Donate
  • Bryan Ferry Charity Gala ProgrammeView
  • Tuscany Charity Bike Challenge – View
  • Schroders Charity Wine Tasting Evening
  • La Pigalle Christmas Party for release of Lowe Christmas Album – View


  • Old Cranleighan Ball Mdme Tussauds, 27th October – View
  • J. Ross, Newton Faulkner, Russell Watson & Beverley Knight, 25th Sept – View
  • Lowe Symposium, 7th December – View
  • Italian AISLO, 9th September – View
  • Hyde Park Ladies 5km Fun Run, 16th September
  • Esporta Swiss Cottage, 6th September – View
  • Boogles Tennis Charity Private Box, 19th-23rd June
  • Charity Cycle Maseille to Monaco, June – View
  • Chicago Musical with Tony Hadley, 29th March – View


  • World Skateboarding Distance Record, BoardFree – View
  • Masquerade Ball, October – View
  • Sophie Hall runs Dublin Marathon
  • David Kilbourn climbs Mont Blanc
  • Charity Cycle, London-Reims, June – View
  • Devonshire House School Fundraiser – View
  • Spitz Wine Bar
  • Dave Cornthwaite skates John’O Groats to Lands End – View
  • Ladies Who Lunch with J.Ross & Jono Coleman, 12th May – View


  • Two Castles Run, 12th June
  • Black & White Ball, May – View
  • J. Ross on Ready Steady Cook
  • Iain Stemp runs London Marathon


  • UK Cup Charity Football Match in Italy donates £8000 – View
  • Hyde Park Fun Run, September
  • Olsen Women of Achievement – View
  • Ladies Who Lunch with Tris Payne, 6th May – View
  • House of Lords Reception, 7th July – View
  • Golders Hill School Fundraiser, Finchley Road


  • Nutcracker Ball, 25th November – View
  • Flora Light Women’s Challenge, 14th September
  • Two Castles Run, 8th June


  • Halloween Party with Tony Hadley & FABBA Girls, 31st October – View
  • Mayfair Valentine Ball with Jonathan Ross – View
  • Flora Light Womens Challenge
  • 77 Wine Bar Anniversary Party
  • BT Ignite Sports Day


  • London Marathon
  • Flora Light Women’s Challenge
  • Valentine Ball with J. Ross & Vanessa Feltz
  • “The Kid” Benefit, Hampstead New End Theatre with Vanessa Feltz, November
  • Witches of Eastwick Benefit with Ian McShane, July – View
  • PJ’s Trust Launch