Trustees & Patrons


  • Jonathan Ross OBE
  • Penny Biziou
  • Carolyn Mitchell
  • Joseph Laycock

Our board of trustees is made up of people who we trust!

The trustees make sure the Lowe Syndrome Trust is running well and is going what it is set up to do - they are responsible for keeping us moving forward in the right direction. The trustees freely give their time and energy to make sure we spend our funding wisely and stay within the law, and also represent the charity at numerous important events and meetings.

Contact us

For further information, contact Andrew Thomas.


CEO, Office Administration and Special Advisors

  • Andrew Thomas - CEO
  • Anna Bogdanova -  MSc Health Psychology, Charity Admin and Project Manager  -
  • Anastasia Pia Lanzara - MRes Clinical Research
  • Paul James - Representatuve and Advisor, Lowe Syndrome Sign for Inclusion


  • Baroness Susan Greenfield CBE
  • Sir Richard Sykes DSc FRS
  • Penny Lancaster
  • Tom Conti
  • Tris Payne
  • Tony Hadley
  • Jonathan Coleman
  • Richard Park
  • Richard Desmond
  • Melanie Sykes
  • Melanie Blatt
  • Christopher Biggins
  • Michael Fennings
  • Mark Emms
  • Susie Webb
  • Ms Seville Bulpitt
  • Mathieu Flamini
  • Lisa Voice
  • Melanie C
  • Adam Cumberland

Medical & Scientific Advisory Board

  • Dr Anthony Norden, Addenbrooke’s Hospital, Cambridge
  • Mr Nimalan Maruthainar, Consultant Orthopaedic Surgeon Royal Free Hospital
  • Dr Detlef Bockenhauer, Consultant Nephrologist Great Ormond Street Hospital
  • Professor Robert Unwin, Professor of Nephrology & Physiology, University College London
  • Professor Shamshad Cockcroft, Department of Physiology, University College London
  • Professor Philip Beales, Hon Consultant in Clinical Genetics, Institute of Child Health
  • Dr Rudiger Woscholski, Senior Lecturer Division of Cell & Molecular Biology Imperial College London
  • Helen Cross, Reader, Paediatric Neurologist, Epileptology, GOS London
  • Professor Peng Khaw, Professor of Glaucoma and Ocular Healing and Consultant Ophthalmic Surgeon, Institute of Ophthalmology
  • Professor Robert Kleta, Potter Chair of Nephrology, Royal Free Hospital
  • Dr. Richard Sandford PhD FRCP, University Reader in Renal Genetics, Honorary Consultant in Medical Genetics, Academic Laboratory of Medical Genetics University of Cambridge